Magical Reverence
There are moments in motherhood that I find so poignant that I feel compelled to write them down. They leave me in a state of awe. Like a suspended, present membrance.… Read More Magical Reverence
Tag: special needs
Pesticles and other hazards.
Beware the pesticles and men-o’-claws.… Read More Pesticles and other hazards.
I see ‘wit my hands!
Idioms, expressions, euphemisms. They’re a reminder of how confusing the world can be for those that are neurodivergent.… Read More I see ‘wit my hands!
Pursue, defend, retreat
From an outsider’s point of view, my life might seem unpleasant or exhausting. Like most lives, it is at times. A series of battles and endless research just to find resources for my kids and always asking myself is it worth it in the end and is it enough. Never really knowing if I’ve ever… Read More Pursue, defend, retreat
Tell me a story.
How did this wondrous creature come into my life?… Read More Tell me a story.
Bye-bye fishies. Hello Five!
“Alright, everyone ready for fishsticks!” “NOOOOO!!!” Owen jumped from his chair and ran screaming from the room, hustling down the hall like a deranged train, as if I set his cars on fire. Leonora and I looked at each other in shared confusion and equal concern. “But Owen loves fish…” “It’s ok, honey. I’ll go… Read More Bye-bye fishies. Hello Five!
Pre-soil and repeat.
Never would I guess that I would have to explain why we don’t plug up the toilet.… Read More Pre-soil and repeat.
The “F” word.
Sometimes the “f” word is foul.… Read More The “F” word.
I do ME-self!
I need to rethink my life’s social story.… Read More I do ME-self!
Pneumostome
Ever wish you had an extra air hole to breathe through?… Read More Pneumostome
Acceptance is a far off destination.
Cathexis. Definition, the concentration of mental energy on one particular person, idea, or object (especially to an unhealthy degree). I’d never heard of this word until yesterday. It’s an accurate label for this phase of my life and for the many parents, like myself, that have kids with special needs. It takes a dedication and… Read More Acceptance is a far off destination.
I have a rash on my head.
There are so many topics they don’t prepare you for in those birthing and parenting books, so many things I wish someone had been honest with me about before I had Nora, and to that point I say to my friend two months away from giving birth to her first child, “Greer, this one is… Read More I have a rash on my head.
Did you “eeear” me?
It’s hard to trust that his progress won’t regress at some point because the, truth is, it might since it has before. Yet, even if it does, I now know he can do the work…… Read More Did you “eeear” me?
Resuscitation of Hope
“Special needs” means just that, a need, not a limitation.… Read More Resuscitation of Hope
I miss me too.
It would be dishonest of me to say I don’t miss my old life. I do, but not most of it, just my friends. Ok, and maybe my waistline, being able to talk on the phone, sleeping in, using the bathroom by myself but, still, mostly my friends. New Year’s Eve reminded me of that… Read More I miss me too.
Whirling dervish of futility
I’m a whirling dervish of futility lately. My calendar looks like a pixelated Rorschach blot. If I went color blind from some sudden aphasia from the stroke (I’m fated to have if I keep up this pace) our whole world would fall apart. So as I organized, color coded appointments once again to match the… Read More Whirling dervish of futility
Kelso Kids 
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