Magical Reverence
There are moments in motherhood that I find so poignant that I feel compelled to write them down. They leave me in a state of awe. Like a suspended, present membrance.… Read More Magical Reverence
Category: autism
When Your Happy Looks Weird.
Their happiness might look weird to others but it was a barometer of discovering the friends that wanted their brand of weirdness.… Read More When Your Happy Looks Weird.
Magical Mispronunciations
How do we inspire hope in our children or ourselves living the way we are now? For me, it’s finding the humor. Like the miniscule moments of hilarity when they misuse an expression or mispronounce a word.… Read More Magical Mispronunciations
Heartwrecked
I will miss my mother the rest of my life. The pain of her loss doesn’t heal or disappear. It becomes part of you.… Read More Heartwrecked
2020 orbisculated us all.
Grapefruit is possibly the only fruit I dislike. Everything about it annoys me until it is added to a soda or a sparkling water, go figure. There’s no sense in that other than our senses don’t need to make any – well, sense. I could list all the things I dislike about fresh grapefruit but… Read More 2020 orbisculated us all.
Don’t read my diarrhea.
If it’s not mispronunciations it’s literal interpretations of idioms with an adherence to a request in an Amelia Bedelia like fashion.… Read More Don’t read my diarrhea.
My stay-at-home order came nine years ago.
I’ve never felt so alone without ever being alone.… Read More My stay-at-home order came nine years ago.
Thank you for being a friend…
Thank you… Read More Thank you for being a friend…
Harmony at Halloween: All buckets are welcome at our door!
All colors of bucket welcome here! Honor all super heros this holiday.… Read More Harmony at Halloween: All buckets are welcome at our door!
It goes by fast because it should
Honor the hard times and know that it can change because it will. It will always be different tomorrow.… Read More It goes by fast because it should
Pesticles and other hazards.
Beware the pesticles and men-o’-claws.… Read More Pesticles and other hazards.
Angry birds and tales of home repairs
One of the benefits of autism is intense focus that can have comical results or at least inspire great art.… Read More Angry birds and tales of home repairs
I see ‘wit my hands!
Idioms, expressions, euphemisms. They’re a reminder of how confusing the world can be for those that are neurodivergent.… Read More I see ‘wit my hands!
Pursue, defend, retreat
From an outsider’s point of view, my life might seem unpleasant or exhausting. Like most lives, it is at times. A series of battles and endless research just to find resources for my kids and always asking myself is it worth it in the end and is it enough. Never really knowing if I’ve ever… Read More Pursue, defend, retreat
Tell me a story.
How did this wondrous creature come into my life?… Read More Tell me a story.
Bye-bye fishies. Hello Five!
“Alright, everyone ready for fishsticks!” “NOOOOO!!!” Owen jumped from his chair and ran screaming from the room, hustling down the hall like a deranged train, as if I set his cars on fire. Leonora and I looked at each other in shared confusion and equal concern. “But Owen loves fish…” “It’s ok, honey. I’ll go… Read More Bye-bye fishies. Hello Five!
Pre-soil and repeat.
Never would I guess that I would have to explain why we don’t plug up the toilet.… Read More Pre-soil and repeat.
The “F” word.
Sometimes the “f” word is foul.… Read More The “F” word.
Once a mummy, always a mummy.
“You see coffee is what keeps mama from feeling like I need a coffin and a coffin is where I’ll finally get to sleep.”… Read More Once a mummy, always a mummy.
Others like me.
At first, I wrote about my pregnancy in a blog because I wanted a journal for my kids that they could access at any time down the road. Then I continued it not for just them but as a life line for myself. As a way to process my turmoil, to feel less alone, with… Read More Others like me.
I do ME-self!
I need to rethink my life’s social story.… Read More I do ME-self!
I, Owen!
Most parents dread kids’ birthday parties if they know any better. (If you don’t, please explain to me your trick for navigating children’s social politics as well as their parent’s.) … Read More I, Owen!
Threats, bluffs, and tears
You can’t take off naked.… Read More Threats, bluffs, and tears
Waiting for snow.
The octaves correlate with the humidity and the temperature is only exceeded by my blood pressure.… Read More Waiting for snow.
Pneumostome
Ever wish you had an extra air hole to breathe through?… Read More Pneumostome
Acceptance is a far off destination.
Cathexis. Definition, the concentration of mental energy on one particular person, idea, or object (especially to an unhealthy degree). I’d never heard of this word until yesterday. It’s an accurate label for this phase of my life and for the many parents, like myself, that have kids with special needs. It takes a dedication and… Read More Acceptance is a far off destination.
I have a rash on my head.
There are so many topics they don’t prepare you for in those birthing and parenting books, so many things I wish someone had been honest with me about before I had Nora, and to that point I say to my friend two months away from giving birth to her first child, “Greer, this one is… Read More I have a rash on my head.
Did you “eeear” me?
It’s hard to trust that his progress won’t regress at some point because the, truth is, it might since it has before. Yet, even if it does, I now know he can do the work…… Read More Did you “eeear” me?
Open-minded, just not agreeing with you.
Most of you, since you’re reading this, understand I have a twisted sense of humor and I don’t shock easily. I’ve been told it’s biting, sarcastic, dry, droll, and once (by an exe) caustic. What I hear in my head though is “you’re funny”. I maintain this blog for my own selfish enjoyment, to document… Read More Open-minded, just not agreeing with you.
Resuscitation of Hope
“Special needs” means just that, a need, not a limitation.… Read More Resuscitation of Hope
I miss me too.
It would be dishonest of me to say I don’t miss my old life. I do, but not most of it, just my friends. Ok, and maybe my waistline, being able to talk on the phone, sleeping in, using the bathroom by myself but, still, mostly my friends. New Year’s Eve reminded me of that… Read More I miss me too.
Politely Defiant
“No, ‘tanks. Not yet…No, thank YOU.” I hear this statement frequently from Owen. It epitomizes his character and willful spirit. Even as he is defying you he is doing so politely. He is kind yet abrupt and I love him all the more for it and find it to be true of most people I… Read More Politely Defiant
“Dear John” letter to Macy’s
This isn’t the first draft or the first time I’ve contacted them. Thanks to social media, I messaged them as well. (My letter is below.) Nora is still asking about them so, Macy’s, in her words, “Why did Macy’s take Christmas away?” So Macy’s, what do you have to say for yourself? To all the… Read More “Dear John” letter to Macy’s
Awakening
He posed for a photo radiating pride for himself that can only be eclipsed by our own for him. Owen posing and saying “cheese”, asking for his photo to be taken, a simple action with so much meaning after these first three years of his life. Most might underestimate how unusual this is or the… Read More Awakening
Pillow Power
We’re pillow people. Correction, the kids and I are pillow people. My husband is not. He’s one of those folks that could sleep on a bare floor with a block under his head. I, on the other hand, am not such a person. As tough as I might be in other areas of my life… Read More Pillow Power
Our summer vacation
We were walking through our neighborhood, holding hands, my mind was wandering. I lost track of the conversation as I felt mesmerized by seed fluff floating by and underfoot. It brought me back to my walk with Nora through the snow in this very spot only six months before. I looked up at our favorite… Read More Our summer vacation
Cheese
I try to say something the kids think is strangely funny or naughty to get them to smile for pictures. When I was a kid, I panicked when someone said “smile” because it normally meant I was suppose to hide being scared or that I was injured. It’s that feeling of being anxious and having… Read More Cheese
I’m a bad mom.
Things have been bad and, when they are, the guilt of it weighs down on me as if gravity has doubled. Bad enough that I hide in the bathroom from my kids. Bad enough they’ve memorized lines from Bob’s Burgers. Bad to the point of not turning the stove on for weeks at a time.… Read More I’m a bad mom.
Real names for real stuff.
The over share. That moment when your child ups the ante, tilts your world, and calls you out. When all the self-esteem boosting, the positive parenting, the talks about “using your words” and “speaking up” comes around to bite you in the ass. Or, in this case, my uterus. It was an average Wednesday in… Read More Real names for real stuff.
Acute exhaustion.
Bilateral acute otitis media (a.k.a screaming nonverbal child, a.k.a. maternal tinnitus, a.k.a. sudden depression), better known as double ear infection and raging fevers. “Poor baby, he must be in so much pain.” He is and so am I. Physically from being headbutted, scratched, and trying to hold forty pounds of a thrashing body so he… Read More Acute exhaustion.
It’s a mother of a day.
The day started with being awake for two hours and longing for coffee as I awaited the “surprise” breakfast in bed. I listened to the chaos in the other room and wondered how long till someone cried. All the while feeling guilty for not being more appreciative on the day I’ve been told that everyone… Read More It’s a mother of a day.
Fork you and your words.
Owen was two. He was speaking seventeen words. He told his dad he loved him. I barely could get him to say “mama”. Home with him every hour of the day and he tells his father, “I love you.” I was Barbara’s jealous resentment. He rarely kissed. If he did it was without using his… Read More Fork you and your words.
Keenly aware you annoy me.
Kids interpret instructions too literally at times. Autistic kids take it to new levels. For instance, I use the refrain, “Use your words not your hands!” I did so over breakfast as the kids wrestled over a toy. In frustration over the disagreement, unable to voice his thoughts at that moment, Owen threw his arms… Read More Keenly aware you annoy me.
The doll will show him.
Nora said, “I want a baby doll that looks like Owen so he knows I love him and I can hold him.” I hugged her and bit back tears, “You are so kind…he knows you love him. Someday he’ll say it to you too but, trust me, he knows that you love him. He loves… Read More The doll will show him.
When a duck says “cock”.
The doorbell rings for a package and Owen checks to make sure it’s the postal carrier he likes. It is, I breathe a sigh of relief that Owen won’t be stripping in anger, and I greet Dave as I open the door. He says hello to Owen, “Hey, buddy, good job keeping your clothes on.” … Read More When a duck says “cock”.
Whirling dervish of futility
I’m a whirling dervish of futility lately. My calendar looks like a pixelated Rorschach blot. If I went color blind from some sudden aphasia from the stroke (I’m fated to have if I keep up this pace) our whole world would fall apart. So as I organized, color coded appointments once again to match the… Read More Whirling dervish of futility
Mama, the baby is stuck again!
“What NOW, Owen?” I’m not proud of that lament but I’m driven to it by noon on a good day. Considering I’ve been up since 3 a.m., that makes it happy hour in some time zones for those without children. So imagine my surprise when I discovered my baby stuck in the cat door. It’s… Read More Mama, the baby is stuck again!
Am I as bad at this as I sound?
The question came to me again. Am I as bad at this as I sound? I read through a comment on a past post that was meant to be flattering but thanked me for sucking at this thing called “parenting”. My original intention for this blog, much like parenting, was to create something for… Read More Am I as bad at this as I sound?
Papa playtime requires protective gear
My husband, Jamie, is meticulous and cautious by nature and trade. He spends his days as an engineer and prides himself on being thorough, accurate, and heading off trouble. Then there’s his play time with Owen. Owen has no sense of fear. He’ll jump from anything and run head long without sensing any imminent danger… Read More Papa playtime requires protective gear
Rock, Paper, Broken Glass
There’s certain truths of parenting, the Murphy’s Law of raising humans, that when you absolutely need things to go your way they probably won’t. Forgot the extra diaper? The baby is going to crap and play with it while he’s in the shopping cart. Your kid forgot to take their lunch to school? Today is… Read More Rock, Paper, Broken Glass
I’m not brave.
Today has been good. I wanted to wait to write this on such a day. A day where I actively feel gratitude and blessed for my children. A day where Owen going down for a nap is a happy smile of contentment and not the exhausted deflation of relief I feel most days after listening… Read More I’m not brave.
HAVE A GOOD DAY!
Owen and I were holding hands as we walked back to the car along the sidewalk from dropping off Nora for school. Drop-off is always hard for him and today was the first time, after a month, that he didn’t cry. He loves his sister so much but he shows it in ways that are… Read More HAVE A GOOD DAY!
Must speak Martian and other skills required.
First, I apologize for taking a brief break. Second, where am I? No, really, (to quote the Talking Heads) “Is this my beautiful life?” Does anyone remember that feeling of panic when they said you could leave the hospital with your baby and your reaction was “no”? I do, many times over. It’s that same feeling… Read More Must speak Martian and other skills required.
The boy who chases cars.
Owen is obsessed with cars. He runs out to grab them up the moment his eyes open. I hear his feet slapping on the hardwood floor and then him running to our bed once he has them. I’m awoken by him launching himself headfirst into my neck, rubbing his forehead on me in his version… Read More The boy who chases cars.
Kelso Kids 
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